Norwegian Foundation for Sturge-Weber syndrome
(NFSW)
NFSW is a national organisation founded
in 1993 by private initiative. The foundation is for everyone with the diagnose SWs
and their relatives. Others can become supporting members.
The foundation's goals :
Advising, informing, and helping people with SWs and their relatives.
Share knowledge about SWs to hospitals and institutions.
Emphasizing SWs special needs, and make the departments aware about their situation.
You should also search the net, the www is constantly changing !
I have provided a search-link for you. Select what you want to search for, click 'Yahoo! Search' !
Address:
Norsk Forening for
Sturge-Weber syndrom
Vestre Haugen 60
1054 Oslo
NORWAY